My friend Amanda sent me something she wrote. She said it was on her mind and she felt she needed to write it down. She sent it to me to use however I saw fit. I thought it would be a nice guest blog. I don't think about how others are viewing me and this situation. My family and I consider this our new normal.
I have known
Holly Lounder for 12 years. Our families
both started going to Family Bible Church around the same time, and we both had
little girls in the nursery. Our girls
became fast friends, and since they spent a lot of time together when they were
little, so did we parents. Over the
years of church functions, birthday parties, and general get-togethers, we all
became friends.
We really got to
know both Scott and Holly much better after they opened their karate school and
we signed our daughter up for classes.
Sure, around that same time, we worked together as Sunday School
teachers for the middle schoolers, but Holly’s migraines kept her out of
commission most weeks. As Sherri got
more involved in tae kwon do, she got her dad to start as well. During this time, I would help out by taking
the three Lounder children out of the studio a few hours every week, since they
were all “stuck” there 4-5 hours a day, 4-5 days a week. As the kids grew, and I started training as
well, both my husband and I started helping out more with the TKD school
stuff. There were times when Holly
couldn’t teach because her headaches were too bad, or she was too tired. Then there was always the illness or injury
that happened when she was about ready to do her next test. Something always seemed to slow down her
achievements more than she liked.
Even still, the
one thing that stands out to me is how much on the go Holly always was. Besides running the school, very often she
was holding down a job of her own or homeschooling her children. There were tournaments every other month, or
so it seemed. She would travel for
training with her instructor. She was always
trying to make it to the after school activities that her kids participated
in. There were the extra events for the
TKD school, such as parties, sleepovers, or Kidz’n’Power training at least once
a month. And even when she was sitting,
she was doing paperwork for the TKD school.
Sometimes, she had so much stuff to do, she’d task some of it to me -
the joke being that I was her brain.
The Lounders
have reached out to the community through their TKD school. Most years they can be seen demonstrating
their skills in the Ellsworth Christmas parade.
Some years, they “show off” at Relay for Life or Autumn Gold Days. They have started a yearly recital that
supports a different local cause each year.
They teach kids not to be victims.
They have focused on bully prevention.
Each demonstration shows several different scenarios where the small
person has to get away from a bigger “bad guy.”
They have helped improve the confidence, self-esteem, and self-control
in many kids (and adults) in the area.
I stopped
training in TKD about 2 years ago now.
And because of how busy life gets, I lost touch with Holly. Sure, I’d scroll through Facebook and see her
posts, comment on them sometimes. We’d
chat occasionally, always planning on getting together sometime soon. But, again, life gets busy. Then I find out she’s been sick - sick enough
that she’s spent a few days in the hospital.
No one knows what’s wrong with her, and they send her home, unable to
work because of how sick she is.
That’s when I
decide that I’m going to help out whenever and however I can. It turns out that one visit a week is what is
working right now. In the beginning, we
were doing paperwork, testing invitations, searching for papers.... I could tell that Holly wasn’t up to par, her
usual self. And what really was
frustrating for me those first few weeks was that I knew how upsetting it was
for her not to be able to do anything.
In the beginning, she did make it downstairs; but I could tell, coming
back up after the little work we did down there wore her out. Sometimes we just sit and visit
together. A few visits, talking would
trigger “tyrannosaurus arms.” Some
visits, she tells me she has slept all day, only waking up because I was coming
over and she had something to look forward to.
She recently started her new treatment, and that has taken an obvious
toll on her. Working on paperwork is
taxing enough that it almost starts seizures.
Watching tv, it’s sometimes hard for her to follow what is going
on. By the end of my visits I can tell
she’s ready to go back to sleep again.
I don’t really
know the purpose of writing this all down.
Holly’s been keeping her own blog of what’s going on, and that’s from
her point of view. I’m an outsider who
has a different point of view, and really hasn’t been around all that
much. But I can see there’s something
wrong with what’s going on with her. She
finally got a diagnosis of Lyme about a month ago. With treatment, things seem to be going
downhill right now. It is so frustrating
to see someone so sick, with the doctors in the area not able to help, and
insurance not recognizing she really has a problem. No treatment is covered, everything is out of
pocket.
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