I'm back from Boston and I'm all done going to doctors who just shrug their shoulders. I didn't expect an answer from the doctor at the Lahey Clinic, but I was expecting them to at least try and come up with some suggestions of tests or possible treatment. I can't believe I got another shrug of the shoulders.
I ensured my symptoms were apparent. I stopped taking the Galaxy impact blend a few days before. I took off my emitter that I wear to help prevent the muscle spasms and uncontrolled movements. I walked up the stairs to get to the office. By the time I actually saw the doctor I looked like a puppet on strings with my out of control spastic limbs!
I looked like a freak show. I was exhausted. My ability to concentrate was horrible, subtracting 7 from 100 put me in tears. All of that and the end result of the appointment was a list of disorders I DIDN'T have. The only recommendation was to go and see a movement specialist. Even with the recommendation the doctor informed me she didn't think I had any major movement disorder. My husband spun a positive light on the appointment in pointing out that now we know for sure what I don't have, it directs us into a more clear direction of what I DO have.
So, now I am playing the waiting game. My appointment with a lyme literate doctor isn't until the first week in November. I don't plan on seeing a movement specialist. My quick research shows me that most movement disorders are actually symptoms of another issue. Makes more sense to me to find the "issue" and work on that instead of bandaging the symptoms.
The good news is I can now work on getting healthier holistically. I had stopped using the Galaxy because the doctors wanted to see me at my worse. The Lyme Literate Doctor I'm seeing understands the importance of taking care of our bodies nutritional needs and would accept my explanation as to why I'm seeing a symptoms reduction without just assuming there is nothing wrong with me sense I'm getting better without medicine. I'm back on two doses of Galaxy a day, I'm confident I will see my body gain more endurance so that I can get out and about more.
My husband is back from the JUUVA conference in Utah. He talked to Dr. Booth about the Galaxy and how it could help those with Lyme Disease. He also talked to a doctor who uses the emitter for acupuncture instead of using needles. I'm really excited about the LIVE and nine strains of probiotics that it has. That will be a necessity when/if I end up on long term antibiotics. I love seeing him so motivated and excited about a company and it's products. He said many of the people he met out in Utah already knew about me and my health struggles. It warms my heart that so many people I don't even know are praying for me. It warms my heart even more that the Juuva Team Extreme has been so supportive.
I want to send big hugs out to those of you who have been helping my family with meals, visits,and transportation. Scott not having to worry about cooking after working from 8am to 7pm is such a relief. The girls have been able to keep their lives more normal, still participating in all the activities teenage girls enjoy.
I have good days and bad days. On the good days I feel hopeful, and enjoy things I took for granted, like cleaning my house. On the bad days I watch netflix and cuddle with Cato Sweet Potato Chip!
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